Tuesday, 9 January 2018
Tuesday, January 09, 2018
My friend lost a battle today with a futile dysfunction that had no place occupying her body and her blood. It seems leukaemia is a determined disease and at last it has won, but to what end, other than breaking the hearts of everyone who has ever had the good fortune to know my friend.
For no good reason this purposeless disease has left three beautiful children and a husband lost, and a mother having to say goodbye to her daughter, and this one friend bewildered and shocked at a world without her in it.
I am new to this, I’ve been lucky so far, everyone has got well again, even she was well for four extra years thanks to her sister’s bone marrow. But here we are, the world seeming upside down and back the front. So many have been through this and lived with it, and I dare say I will too, but it is surreal and wrong and I wish it were a bad, bad dream.
Kim Edwards, 16th July 1966 - 6th January 2018
I want her back and I didnt even see her every day, I can’t even imagine her family’s pain if this is how I feel, but thus was the depth of her. I know everyone says when someone dies that we almost canonise them, but she was always angelic to me. She was patient and kind, and generous, so generous. She didn’t judge or hold grudges, she was different to most. She was an extraordinary human being. And I feel so honoured that I knew her, if only for twelve short years. And they were too short, but I treasure the memories, the pragmatic and open way she spoke. Her laugh, her huge heart and the way she coaxed you off the edge with a simple ‘right?’ at the end of her sentences, gently pushing you towards a smarter thought. Thoughts that came so naturally to her.
I am angry though, so angry that they couldnt save her, that “they” didnt deem her acute, she was acute to us! She was so acute whoever didn’t think so, so acute to us St Vincent’s, and your b/s about not enough beds! And hey, you think she may have been acute now that she didnt make it? I know she wouldnt approve of me being mad, it was not her style, but I would fight for her if she’d let me, and I’ll fight now, I’ll rage against the universe that decided this was a person that’s time was up.
But you did fight my darling friend, you fought so hard, and now you can rest. And I hope you were at peace as much as this nonsensical proposition could leave you with. I miss you so bad already and we live in different cities. But I always relied on your next visit, our next wine under fairy lights, or you sleeping on our couch and being gorgeous to my boys, as only you, in your natural confidence could. You were so comfortable in your own skin, you put everyone you met at ease in theirs, even 7 year old boys were taken with your charm.
I would do anything to have been able to comfort you as you did me, and save you the way you saved me. O if only, if only I could have brushed the hair from your face and made it all go away. O what I would give, what we all would have given to give you more life.
There are no more words that can describe the hole you have left my darling, beautiful friend, Kim. I will miss you forever, I love you. I will try to live in a way that honours you and the inspiration you have been to me and to so many. Rest now, rest.
Update: I am riding 40km in gear Up Girl to raise money for the Leukaemia Foundation, would appreciate anything you can give to support: please donate here and stop this senseless disease: https://give.everydayhero.com/au/nicole-does-40km-gearup-girl
Friday, 24 January 2014
Friday, January 24, 2014
Your hair's a little shorter now
but your smile is unmistakeable
Your resilience is being challenged
by life's great enemy and its barbaric cure
vulnerability only showing how strong you truly are
Bandana as cool as your even temper
If only those who saw it knew that being you, even now, is lucky!
I'm sure I've bumbled through my visits
the fear and helplessness sneaking into my eyes
as I desperately hide myself behind an inane story about work
But I know you see me
I know your insightfulness
nothing escapes your astute eye
even poisonous chemicals won't take that from you
You are a rare one, sharp as a tack,
Loved by so many
Feared by some I'm sure
but I will be there to help you strike fear into this cowardly disease
and I know there will be many of us trying to beat it away from you
I wish I wish I wish I could take more of the battle on
but please when you think you can't stand, on those inevitable down days
remember all of our love will be there to hold you up
so you can see the light at the end of this 5 month tunnel.
And in case you don't know - you are my hero...
and I'm so honoured to be your friend.
and I'm so honoured to be your friend.
Dedicated to an amazing woman bravely fighting Leukaemia... please sponsor me in the World's Greatest shave... I'm colouring but will shave it all off if I get over $2k!!! VISIT http://my.leukaemiafoundation.org.au/wideeyedgirl